The kid skipped down the hospital corridor and he was smiling.
"I'm happy, I'm healthy, I'm going shopping!"
We passed a doctor who smiled. He knew.
Signed ourselves out of hospital, walked past the Lego display and into a waiting taxi.
Our first stop was for some new beads for Mr C's Bravery Beads Necklace, one for blood tests, one for a hospital visit and one for some good news. The necklace is growing, a visual reminder of his journey over the past two years.
We found some Lego and two XBox 360 games that he had wanted, so he was very happy. Not a care in the world. How it should be for an 11 year old kid.
Two years after I first noticed something was not right, Mr C (aged 11) is officially in remission from Crohn's Disease. It has taken a lot of tests, procedures, blood drawers, MRI's, iron infusions, tears, a liquid diet, a low residue diet, a normal diet and medication every day to bring him back, and it's an amazing feeling.
He still has issues with aching joints and blurry vision, and his skin doesn't tolerate the sun, but everything else is clear and he has energy!
He is a strong little guy, so accepting of what has to happen and at times when I've been the one struggling, he just gets on with it and I'm reminded that we are in this together.
I've looked at his little body, and wondered what was going on inside him that shouldn't be. I've wished that I didn't have to give him the drugs every night but I know that if I don't, he will get sick again.
That is a really difficult cross to bear but one which I own.
I know things may change and he still has puberty to navigate, but for now, we are blessed and fortunate and so grateful to be where we are.
Life is good.
10 comments:
Wow great news that he is feeling better. I hope it stays that way!
Thank you, lots of support from friends also, which I really appreciate xo
Lots of love coming our way!
Keep smiling and positive!!
Ron
So glad to hear that he's in remission now. Here's hoping puberty will be a smooth ride for him (and you) xx.
What a lucky little boy he is to have a great mum like you...
I am so glad he can start to put this behind him - what an incredibly brave little guys - AND mum! Much love to you guys and wishes that it is smooth sailing from here on in xx
I vaguely remember you announcing this two years ago. My 9 year old was just diagnosed last month and is due for his 2nd colonoscopy this Friday. PLEASE, any and all information you can give me would be so greatly appreciated. I love your necklace idea. I need to figure something out for my son.
@ Ron and Miss Sophie, love right back at ya! xo
@ Norlin, thank you, I am hoping the same xo
@ Sharon thank you, I am the lucky one x
@ Sonia positive thoughts! All because of kind words from friends like you x
@ Foursons oh no really? Mr C was 9 also, I will make contact with you right away. Often wonder how you are going xx
That is wonderful news and let's hope as he grows stronger and stronger things will improve even more. All the best to both of you. x
Thanks Mimsie, he is getting stronger and he is happier too, which is just wonderful xo
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